Non Government Organizations
Autism Speaks was founded in 2005 and has grown into the nation's largest autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. RUCDR is proud to have been chosen to process, store and distribute biospecimens for the research projects sponsored by Autism Speaks. For more information, visit our partner's website.
Autism Genetic Resource Exchange (AGRE)
Autism Genetic Resource Exchange (AGRE) is a non-profit DNA repository and family registry housing a database of genotypic and phenotypic information that is available to autism researchers worldwide. Founded by Cure Autism Now (CAN) in 1997, AGRE oversees one of the world's largest shared resources for the study of autism and related disorders, housing a collection of over 1300 well-characterized multiplex and simplex families. The processing of AGRE biospecimens, including the extraction and distribution of high quality DNA, lymphoblastoid cell lines, and plasma, is done at the RUCDR and made available to the greater scientific community. AGRE is currently funded by the National Institute of Mental Health (NIMH) and Autism Speaks, which merged with CAN in 2006. For more information, visit our partner's website.
The High Risk Baby Siblings Research Consortium
The High Risk Baby Siblings Research Consortium is a partnership between Autism Speaks and the National Institutes of Health, led by the National Institute of Child Health & Human Development. As the recurrence rate of autism in families where one person is affected is possibly 10-fold higher than that seen in the general population, this group has the unique opportunity to study autism at the earliest stages of life. This makes possible the identification of the underlying neurobiological mechanisms that lead to the development of autism. In addition, these projects can have a collective impact on the research and clinical communities by developing recommendations and guidelines that inform clinical practice and policy. For more information, visit our partner's website.